Alzheimer’s Australia’s Dementia Advisory Committee

My name is Kate Swaffer. I am a person living with a diagnosis of younger onset dementia and am advocating for us all. I'm Chair of the new Alzheimer’s Australia’s Dementia Advisory Committee.

The Alzheimer’s Australia’s Dementia Advisory Group is a new group that aims to determine the priorities of people with dementia, contribute to policy and advocacy work, promote dialogue between those with dementia and service providers with a view to promoting a better understanding of their social and care needs, and assist in refining and evaluating Alzheimer’s Australia’s national programs. Communication is via email and teleconferences and the group may meet face to face one to two times per year. It is fully funded by Alzheimer’s Australia, and members of the group may be supported by their partners or carers to participate in meetings.

The inaugural meeting of the Alzheimer’s Australia Dementia Advisory Committee (see above photo) was held recently in Canberra during Dementia Awareness Week, 17-18 September 2013, and as Chair of this new consumers group, I welcome this initiative. Without the vision and goodwill of Mr Glenn Rees, AM, CEO of Alzheimer’s Australia, it would not have happened.

 New members are still being sought from around Australia, as we continue to seek individuals with dementia of all ages, who are interested in having a say about the needs of people with dementia in Australia. It is important we build up a data base of PWD to continue this very important work.

Every country should think about having a Dementia Advisory Council.

(Author's book: Love, life, loss, A roller coaster of poetry)

Watch a video about Kate at

Published on 07 October 2013
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